Wednesday, January 2, 2013

Narcolepsy and Goals

So far the new year has been mellow. I did 30 minutes on the stationary bike and walked my steps a few times (the last wasn't for exercise, more necessity that just happens to be "exercise"). I need to stay on the ball and keep up with minor exercise. I can't walk the track every day but I have the bike thing in my house so as long as I feel ok I should be doing it. I haven't yet today but it's still morning.

Tomorrow I have an appointment with my neurologist. I haven't been taking the topamax but I plan on discussing it with her. I still need to find a gynecologist that accepts my insurance. I called my primary for a referral and they don't have to do that anymore, my preferred gyn doesn't accept my HMO, my old gyn doesn't accept my HMO, and the "computers are down" at my insurance company so they're supposed to call back with a list of some who accept it. Seems like the Hags of Fate have something against my reproductive organs. This is the only field I have had trouble in almost since JSmiley was born. I've had troubles multiple times just getting birth control, cycle problems, then when I finally gave in and set up an appointment, they don't accept my insurance. Fine let it slide and now again, don't accept it. It really should not be THIS hard to get care for womens health issues. I got in to my EP easier than this. If I could go through my primary they'd be the ones to handle it but no. Ugh. I'm on my last refill of birth control too (well, about to refill it).

I'm nervous about how tomorrow will go. She wasn't convinced I have narcolepsy (though I'm not sure why) but the neurology sleep specialist didn't really do anything. Just asked questions and said the test was positive so until proven otherwise, it's narcolepsy. I downloaded the ebook by Julie Flygare, Wide Awake and Dreaming. It's her memoir on living with narcolepsy with cataplexy. She's offered it free twice on Amazon so far (which is how I got it, I don't have the ability to buy new books until tax time). I read it in two sittings since I got it after 9 PM and went to bed a little while later. But I read over half in one sitting. It was inspiring in a way. I know I don't have cataplexy so it's not the same but I have NCS and IST so I think it'd kind of even up. She graduated from LAW school, ran a marath and wrote a book. I may not be able to do much but reading her book makes me want to find a goal and strive towards it. I already have minor goals, you know, first is to improve a little, to where I don't get tired/sick just by being out. I want to improve my fitness too and lose weight. Those are my goals that were already in place. I've always wanted to be a writer too but I doubt that will happen. I'll find something. Anyway. I'll write more later on (or after my appointment).

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